As the White family celebrated the second birthday of twins Pip and Leo on the weekend, their smallest boy still remains plagued by an extremely rare condition he was born with.
Leo the Lionheart, as he’s known, was born with a laryngeal cleft. This inhibits his breathing, eating and drinking.
The past year has been a blur of surgeries, medical appointments, hospitals and long road trips which has been strongly supported by the community.
There have been many stays in Ronald McDonald House (RMH) while Leo under-went treatments in Sydney.
Waiting for them were donated groceries supplied through Lawrence’s IGA.
August is Earn Your Stripes month and the White’s are paying it forward this month, and ask for your support.
Leo remains tube fed. There is nothing more from a surgical point that can be done for the toddler.
Mother of six, Annah White remains positive while there aren’t any surgeries left. “We are still in the thick of it and continue to stay at this amazing house for every Sydney trip,” Mrs White said.
“They are honestly the most incredible charity and do amazing work for country families with very sick kiddos.”
There will be a lot of work to do with different specialists to get him tube free. “For now we just have to be happy with baby steps forward and we will get him tube free eventually,” she said.
Donations to support RMH charity can be made at Lawence’s IGA.